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Accelerating the world's transition to sustainable health
There are more than
10000
rare and orphan diseases
in the world
Source: Nature
Haendel et al. 2020 10.1038/d41573-019-00180-y
around 5%
of the world population
is affected by a rare disease
Source: Nature
Nguengang et al. 2020 10.1038/s41431-019-0508-0
Rare is not rare
In the world
> 400 million
affected
Rare?
In the USA
30 million patients
In the EU
36 million patients
Source: NIH
Source: European Commission
95% of Rare diseases
do not have drug
Rare and neglected diseases
frequently undiagnosed
in emerging countries
immeasurable numbers
Source: Orphanet
Fermaglich et al. 2023 10.1186/s13023-023-02790-7
Source: Frontiers
Taruscio et al. 2023 10.3389/fpubh.2023.1079601
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